The purpose is to provide the public with opportunities to participate in health research to improve wellbeing among culturally diverse adults 50 years and older and across the lifespan, particularly African American, Latino/Hispanic and Caribbean. However all are welcome!
Your contact information will be kept private and only shared with the AgeWell organizations. Your participation will be kept private and protected to the fullest extent provided by law. We will not include your information in any report we publish.
There is minimal risk in participating in the registry potentially related to breach of confidentiality. All databases will be stored on secure servers with security measures established to keep participants’ information private. We will also have monthly fidelity checks and protocol reviews. Any suspected data or information breach will be reported to the appropriate officials at each institution and to the National Institute on Aging.